I went by for a visit with Dad today...for the first time in several visits he was more awake this time. I got a nice smile and bright eyes when I arrived. He was mumbling a bit, and seeming to have a hard time hearing, but was definitely giving me a lot of eye contact and pleasant responses. I helped feed him some thickened apple juice and he enjoyed it, opening his mouth wide for every bite. Anna said he continues to be a good eater. In general, he's having some very weak days of lots of sleeping and staring at the ceiling, but also will have alert days as well.
He got on to something about "dancing," pointing me to Anna or the guy on the TV set, saying "dance with him." He was in his recliner...eventually I moved to his other side and asked him if he wanted to dance. I grabbed his arm and started dancing with him (as he was seated, so it was mostly just "arm dancing" that we were doing.) I was doing twirls and humming music and moving my feet...he really seemed to enjoy it. When I stopped after a bit, he was moving his arms like he wanted to do more, so we did it some more. His arms were strong and he was holding me firmly when I would do a "dip" and a few times I would come in for a peck kiss, and he kissed me back! We enjoyed it for quite a while...very nice!!
Tuesday, February 07, 2012
Wednesday, November 30, 2011
Bingo Day
Just got back from a visit with Dad. It was Bingo time at the house so he and a couple of the other housemates were sitting around the table getting ready to play with Janice, one of the administrators leading the game. Dad was sitting with his eyes closed, and stayed that way for the most part of my visit. I did get him to open his eyes to look at me and have some eye contact, but not much. He's a little more responsive to Anna. She was feeding him some chocolate "thicket" milk with a spoon and he was consistently opening his mouth for each spoonful he was presented (seems to do it with his eyes closed.) Anna said he does this for most meals, though he appears to have lost weight from the last time I saw him (could feel his spine through his back). Anna said that he had definitely lost weight...the hospice group, which had been considering taking him off, told Anna because of the weight loss (measured by his arm circumference) they would keep him on for another 2 months and then re-assess again. I haven't received any phone calls from the hospice nurse since the last time that Justine and I met with her in October.
Janice told me that Dad was surprisingly very alert last Wednesday, and vocalizing a bit. Anna reports that mostly Dad is sleeping or sleepy, but does have occasional "agitation" days where he is more alert, up all day (and into the night)...though unlike before, he really can't get up on his own, so hopefully is safe from any falls in that scenario.
When Dad is sitting like he does, with his eyes closed, it does appear to me that he is still hearing what's going on for the most part, and knew I was there (when Anna said 'it's your daughter, Barbara, he nodded)...in some ways it seems he is choosing to shut it out. At one point during the Bingo game he was focused on wanting to pull the card up off the table (it was taped down with scotch tape.)
Janice told me that Dad was surprisingly very alert last Wednesday, and vocalizing a bit. Anna reports that mostly Dad is sleeping or sleepy, but does have occasional "agitation" days where he is more alert, up all day (and into the night)...though unlike before, he really can't get up on his own, so hopefully is safe from any falls in that scenario.
When Dad is sitting like he does, with his eyes closed, it does appear to me that he is still hearing what's going on for the most part, and knew I was there (when Anna said 'it's your daughter, Barbara, he nodded)...in some ways it seems he is choosing to shut it out. At one point during the Bingo game he was focused on wanting to pull the card up off the table (it was taped down with scotch tape.)
Thursday, October 13, 2011
Today
I stopped by to see Dad today. At first, he wouldn't open his eyes or respond to me. It took Anna prompting him to finally get him to open his eyes. He looked like he wanted to form some words, but didn't do so, though I got a really nice big smile. Haydee was there today and said she couldn't get him to walk. They both reported that he continues to eat well, most of the time needing to be fed, not doing it himself. It sort of seems like he has lost a lot of his "muscle memory" where by he no longer seems to have the coordination to do some of the movements that he used to do, or does them, but shows a lack of coordination in doing so. For example, to smile, his face was contorting somewhat.
Anna mentioned that Dad periodically goes into the eyes closed routine perhaps intentionally, when the chaplin is there, for example. But then will peek one eye out when they're gone!
I haven't heard from the hospice group in awhile. I'm guessing he'll be up for an evaluation with the doctor sometime soon. Last doctor visit was June, though nurse comes weekly.
Anna mentioned that Dad periodically goes into the eyes closed routine perhaps intentionally, when the chaplin is there, for example. But then will peek one eye out when they're gone!
I haven't heard from the hospice group in awhile. I'm guessing he'll be up for an evaluation with the doctor sometime soon. Last doctor visit was June, though nurse comes weekly.
Friday, September 23, 2011
This week
Had a visit with Dad this past Wednesday, as well as a couple of weeks ago. I had heard from Johanna, the hospice nurse that Dad was showing "stiffness" when the caregivers were doing transitions. She thought perhaps he might benefit from a drug "baclofen" and was going to call me back to discuss that option. I haven't heard back from her yet, but when I was there on Wednesday, Anna and Al said he wasn't doing it quite so much lately as he had been. While I was there, Dad was being fed lunch, but he did look up at me with wide eyes to respond to my greeting and spoke a few words coherently. He looked good.
Haydee has been reporting that somedays Dad doesn't want to do much, but on others he is alert and still walks. When she was there yesterday, he was feeding himself and did walk.
I guess there's a chance that Dad might "graduate" from hospice if he continues to remain stable. I think his next assessment will be in November.
Haydee has been reporting that somedays Dad doesn't want to do much, but on others he is alert and still walks. When she was there yesterday, he was feeding himself and did walk.
I guess there's a chance that Dad might "graduate" from hospice if he continues to remain stable. I think his next assessment will be in November.
Tuesday, August 09, 2011
Visit with Dad
Barbara, Faye, Russ and I visited Dad on Saturday, August 6. I had previously seen him in June 2 or 3 times with Justine, Cora and then Chip while visiting Barb. In June, he was not opening his eyes much or talking, though he did appreciate the visit, held our hands, etc. They said at the time they were having to feed him though he was still a good eater, but he wasn't walking much. We also had a priest visit and give him the Sacrament of Anointing which he also seemed to enjoy.
On this visit, he was on a lounge chair and gave a big smile when we said hello to him. When Russ said hello, he said something like, "I busted you in the nose," and then that set the theme for the rest of the visit, as no matter what we asked or said, it came back to him busting somebody's nose, or his getting busted, or him busting two noses, etc. It was pretty funny, and he had his eyes open the whole time, and it was enjoyable. We heard that unlike a month or two ago, he was walking a bit, but it is getting very difficult to get him up and even also to sit back down, as he arches his back instead of bending forward. He is still eating, but I believe they feed him more than him doing it himself. The hospice nurse follows his weight by measuring his arm, and he has lost some. But I thought he looked pretty good, not underweight. He had a recent haircut from Haydee.
I am really impressed more and more with the great care he seems to be getting. We were looking at his feet, and I noticed how soft and smooth his legs were, it was clear lotion was being put on after bathing, for instance. I like it that I see the same caregivers each time I visit.
On this visit, he was on a lounge chair and gave a big smile when we said hello to him. When Russ said hello, he said something like, "I busted you in the nose," and then that set the theme for the rest of the visit, as no matter what we asked or said, it came back to him busting somebody's nose, or his getting busted, or him busting two noses, etc. It was pretty funny, and he had his eyes open the whole time, and it was enjoyable. We heard that unlike a month or two ago, he was walking a bit, but it is getting very difficult to get him up and even also to sit back down, as he arches his back instead of bending forward. He is still eating, but I believe they feed him more than him doing it himself. The hospice nurse follows his weight by measuring his arm, and he has lost some. But I thought he looked pretty good, not underweight. He had a recent haircut from Haydee.
I am really impressed more and more with the great care he seems to be getting. We were looking at his feet, and I noticed how soft and smooth his legs were, it was clear lotion was being put on after bathing, for instance. I like it that I see the same caregivers each time I visit.
Friday, March 04, 2011
Update on Dad's condition
Dad went to see the doctor this past Tuesday as he continued with some coughing and wheezing (though still no distress.) His regular physician (Dr. Gee) wasn't there that day. Dr. Annable had prescribed an anti-biotic and also took x-rays.
Yesterday I got a call from the administrator, Chris, at Emerald Isle who said the caregivers were reporting Dad wasn't getting better and had been wheezing a lot in the morning. Chris contacted the doctor's office, hoping they might call in a prescription, but Dr. Gee, who was there that day, said Dad would need to be seen by him first to re-assess. I took him in for a 4:15 appt. Upon getting him in my van, with help from the caregivers, I did see the wheezing they had been observing. I could definitely hear that his airways seemed a little constricted, but again, he didn't seem too distressed by it. Within a few minutes, the wheezing had stopped and he seemed relax and comfortable. When we were sitting in the waiting room, Dad saw an overweight woman get up who was called to go in and Dad said clearly "She seems pretty heavy walking over there."
When the doctor arrived, he talked about Dad's xrays which did indicate some fluid in his right lung. We discussed the possibility of Dad having aspirated while drinking. Caregivers have said that Dad often coughs when/after drinking. They feel his eating/swallowing of food is fine, but he seems to have more difficulty drinking.
The doctor mentioned that they can run these kinds of swallow tests in the hospital. I told the doctor that if a hospital visit is not essential, I feel it is better for Dad---the experience of Dad in the hospital last year---how agitated, confused, uncomfortable being poked, prodded, moved, etc I personally feel is something to avoid if not necessary. I welcome discussion from others on this matter. The doctor obviously didn't feel it was critical..he prescribed a stronger anti-biotic as well as a diuretic which presumably helps get the fluid out of his lungs. Note that Dad's oxygen level was good (96%), and his BP was fine. The doctor also said he would order a home/health evaluation for speech/occupational therapy to review the drinking/feeding issue. He said that if Dad is having problems, a feeding tube might at some point be recommended. I think this is another discussion we would need to have should we face that decision.
The doctor also brought up the congestive heart condition that was discovered when he was in the hospital last year for his hip break, which may somehow contribute to the fluid in the lung. I should have asked more questions as the connection and the condition are not fully clear to me, but I will try to get more answers at his follow up, which is scheduled on March 17th.
AFter the appointment, I had to call a taxi (the same guy who picks up Dylan in his taxi/van for school) to take Dad home, as it was going to be too difficult for me to get him in my van by myself. I picked up the prescriptions and took everything over to the house. By the time I was there, Dad was happily finishing up his dinner at the table.
Paul and I stopped by today around 11am to see Dad. Anna reported that Dad had not been wheezing all morning. Dad gave Paul a big smile when he saw him. Hopefully he will continue to improve over the weekend.
Yesterday I got a call from the administrator, Chris, at Emerald Isle who said the caregivers were reporting Dad wasn't getting better and had been wheezing a lot in the morning. Chris contacted the doctor's office, hoping they might call in a prescription, but Dr. Gee, who was there that day, said Dad would need to be seen by him first to re-assess. I took him in for a 4:15 appt. Upon getting him in my van, with help from the caregivers, I did see the wheezing they had been observing. I could definitely hear that his airways seemed a little constricted, but again, he didn't seem too distressed by it. Within a few minutes, the wheezing had stopped and he seemed relax and comfortable. When we were sitting in the waiting room, Dad saw an overweight woman get up who was called to go in and Dad said clearly "She seems pretty heavy walking over there."
When the doctor arrived, he talked about Dad's xrays which did indicate some fluid in his right lung. We discussed the possibility of Dad having aspirated while drinking. Caregivers have said that Dad often coughs when/after drinking. They feel his eating/swallowing of food is fine, but he seems to have more difficulty drinking.
The doctor mentioned that they can run these kinds of swallow tests in the hospital. I told the doctor that if a hospital visit is not essential, I feel it is better for Dad---the experience of Dad in the hospital last year---how agitated, confused, uncomfortable being poked, prodded, moved, etc I personally feel is something to avoid if not necessary. I welcome discussion from others on this matter. The doctor obviously didn't feel it was critical..he prescribed a stronger anti-biotic as well as a diuretic which presumably helps get the fluid out of his lungs. Note that Dad's oxygen level was good (96%), and his BP was fine. The doctor also said he would order a home/health evaluation for speech/occupational therapy to review the drinking/feeding issue. He said that if Dad is having problems, a feeding tube might at some point be recommended. I think this is another discussion we would need to have should we face that decision.
The doctor also brought up the congestive heart condition that was discovered when he was in the hospital last year for his hip break, which may somehow contribute to the fluid in the lung. I should have asked more questions as the connection and the condition are not fully clear to me, but I will try to get more answers at his follow up, which is scheduled on March 17th.
AFter the appointment, I had to call a taxi (the same guy who picks up Dylan in his taxi/van for school) to take Dad home, as it was going to be too difficult for me to get him in my van by myself. I picked up the prescriptions and took everything over to the house. By the time I was there, Dad was happily finishing up his dinner at the table.
Paul and I stopped by today around 11am to see Dad. Anna reported that Dad had not been wheezing all morning. Dad gave Paul a big smile when he saw him. Hopefully he will continue to improve over the weekend.
Saturday, February 26, 2011
Cough
Got a phone call this evening from Anna at Emerald Isle. She expressed some concern that Dad has been having an unusual cough this week. They also noticed a couple of times when he was getting up and/or getting changed, that he even sounded short of breath. Haydee told me when she saw Dad on Thursday, his voice was hoarse and she thought perhaps he might be getting sick. She also mentioned that Dad seems to cough after drinking, and I got the same report from other caregivers there, though this seems to be an ongoing issue.
My immediate concern was perhaps he had aspirated, and might have a pneumonia. I went over there (just returned), and he sounded good and looked good. I didn't see any of the symptoms that were mentioned, though they told me it was only occasional. We did get him up to walk to see if it might spur the cough, but it didn't. I didn't notice any wheezing or distress with Dad at all. I asked him to breathe deep, putting my hand on his back, but he didn't really take much of a deep breath. When I asked him a few times how he was feeling, each time was "I'm feeling pretty good!" or "feel fine".
We agreed to continue watching him over the weekend, and then call the doctor on Monday for an appointment as needed.
On another note, Jennie was here this week and did the bulk of the work to complete Dad's taxes. We got them filed today...he will get $1900 from the Feds, and owes $672 to California.
My immediate concern was perhaps he had aspirated, and might have a pneumonia. I went over there (just returned), and he sounded good and looked good. I didn't see any of the symptoms that were mentioned, though they told me it was only occasional. We did get him up to walk to see if it might spur the cough, but it didn't. I didn't notice any wheezing or distress with Dad at all. I asked him to breathe deep, putting my hand on his back, but he didn't really take much of a deep breath. When I asked him a few times how he was feeling, each time was "I'm feeling pretty good!" or "feel fine".
We agreed to continue watching him over the weekend, and then call the doctor on Monday for an appointment as needed.
On another note, Jennie was here this week and did the bulk of the work to complete Dad's taxes. We got them filed today...he will get $1900 from the Feds, and owes $672 to California.
Friday, January 07, 2011
Doing well
With holidays behind and kids back to school, finally got some time to have a longer visit with Dad. Unfortunately he was just sitting down to dinner (4:45!) so he was quite focused on that. He was having a nice looking healthy salad and pizza. He did talk to me a little bit, which was sort of an accomplishment because he usually won't respond at all while he is eating.
Reports from Haydee and Anna continued to be good...Dad walking stronger, talking a lot. He still looks great and seems quite content.
Reports from Haydee and Anna continued to be good...Dad walking stronger, talking a lot. He still looks great and seems quite content.
Tuesday, November 09, 2010
Doing well
Sorry for infrequent blogs of late--busy prepping for my Special Children's League Fundraiser and also trip to NY to visit Melissa and new baby.
Dad has been doing the same...still walking, eating well, some days more talkative than others. Today when I went to visit him, his speech was strained, though Haydee said that earlier in the day he was speaking well. He seemed stuck on a phrase as I spoke to him, perhaps something he heard on television--can't recall it exactly, had the number 4 in it. I brought out some photos and he still kept repeating the phrase, until I got to a photo of Mom and mentioned it had been four years since she had died. He then said "I wish she didn't leave." Continued to show the pictures, pointing out photos of granddaughter Suzie and that she was expecting her 2nd child.
Anna has reported that all is well with Dad. She and Al said they wished that the other residents would eat like Charlie! The new gentleman that had recently moved in unfortunately died this morning (found dead in his bed at wake-up.)
Got a letter from Emerald Isle management that they are increasing the cost per month from $4000 to $4200 "due to rising staffing and operational costs" effective January 1, 2011. For now, I am still utilizing Anna and Haydee, each an extra 8 hours/week ($15/hour) to give Dad more individualized attention, including exercise and social interaction. I think having Anna for 4 hours on 2 days, secures some extra attention and good will from all the Emerald Isle caregivers (Anna, Al & Juana) on the other days of the week as well. I think Haydee, who is so conscientious, pleasant and friendly, offers Dad a regular special visitor that I hope and think he enjoys. Let me know if you have some other thoughts.
Dad has been doing the same...still walking, eating well, some days more talkative than others. Today when I went to visit him, his speech was strained, though Haydee said that earlier in the day he was speaking well. He seemed stuck on a phrase as I spoke to him, perhaps something he heard on television--can't recall it exactly, had the number 4 in it. I brought out some photos and he still kept repeating the phrase, until I got to a photo of Mom and mentioned it had been four years since she had died. He then said "I wish she didn't leave." Continued to show the pictures, pointing out photos of granddaughter Suzie and that she was expecting her 2nd child.
Anna has reported that all is well with Dad. She and Al said they wished that the other residents would eat like Charlie! The new gentleman that had recently moved in unfortunately died this morning (found dead in his bed at wake-up.)
Got a letter from Emerald Isle management that they are increasing the cost per month from $4000 to $4200 "due to rising staffing and operational costs" effective January 1, 2011. For now, I am still utilizing Anna and Haydee, each an extra 8 hours/week ($15/hour) to give Dad more individualized attention, including exercise and social interaction. I think having Anna for 4 hours on 2 days, secures some extra attention and good will from all the Emerald Isle caregivers (Anna, Al & Juana) on the other days of the week as well. I think Haydee, who is so conscientious, pleasant and friendly, offers Dad a regular special visitor that I hope and think he enjoys. Let me know if you have some other thoughts.
Monday, October 11, 2010
Friday evening
I went to visit Dad this past friday evening. He had finished dinner and was in his bed watching TV. I have to say, he just looked so content and comfortable. His face just looked fantastic. Wish I'd had a camera...will try to remember next time. As soon as I arrived I asked how he was doing and he said in a very pleasant voice, "just great." We conversed for a little while...his voice was strong, and the context of his statements were there, but the sentences as a whole were sort of gibberish. Anna reported that Dad had been doing well all day, walking strong, and talking a lot. She used the term "alert" to describe it.
Saturday, October 02, 2010
Getting better
Ryland was out of school early yesterday, so he and I stopped by to check in on Grandpa. He seems to be getting better. He was in his room on the recliner watching TV. They are still keeping the residents mostly separated to avoid contagion.
Dad said he recognized me, and he seemed to stare at Ryland for a bit. He said he was doing 'great.' Tried to get him to tell us about his cross country days, sharing Ryland's current news, but he didn't elaborate.
Anna reported that Dad is now starting to show some of what he used to do well before the surgery where he starts to get up on his own, saying he has to do something, so they are keeping a close eye on him. He continues to take walks during the day, eat and sleep well.
Dad said he recognized me, and he seemed to stare at Ryland for a bit. He said he was doing 'great.' Tried to get him to tell us about his cross country days, sharing Ryland's current news, but he didn't elaborate.
Anna reported that Dad is now starting to show some of what he used to do well before the surgery where he starts to get up on his own, saying he has to do something, so they are keeping a close eye on him. He continues to take walks during the day, eat and sleep well.
Monday, September 27, 2010
Catching a cold
Got a call from Anna today that Dad seemed to be catching a cold. I stopped by a little while ago to visit for a bit. He was quite sleepy. He was in his room in the recliner watching TV, but very dozy. They are trying to keep the residents separated to help allay sharing of the virus. Anna said he had a slight fever in the morning (99) and that his voice was hoarse, occasional coughing. I told her she could give him Tylenol which she had done. He seemed fairly comfortable, though pale when I saw him. She is helping him eat and drink to ensure maintaining hydration. We're having a little heat wave...the change in weather seems to be affecting people...Paul had a bad cold last week.
Friday, September 17, 2010
Visit
Went to visit Dad today...lately have only been able to squeeze in brief visits, but today I had a little more time. I showed him the postcard that Cathy sent him, and he was able to read some of it on his own. I asked him if he wanted to go for a walk, so we did. We walked inside the house as he said he didn't want to go outside. He is slow, but methodical. Took a break to sit in the wheelchair then chatted some more. After awhile, took another walk back to the recliner, where he seemed happy to rest for awhile. All reports from the caregivers are good. His appetite is still good...when I'm there during a meal he won't even look up from the plate to respond! Overall wasn't very talkative today, but looked good and when I asked how he was doing he said "i'm doing fine!" They are expecting a new roommate next week...a gentleman!
Tuesday, August 10, 2010
Doctor's Appt
Today I took Dad to a physical check-up with Dr. Gee. Anna was working, so she traveled with us to assist with the transfers. Dad had to skip breakfast for the blood work so he was a bit lethargic. He complained when he got "stuck" for the blood test, but after I gave him the snack I brought for him, and he had some juice, he seemed to be happier and woke up a bit. He did well getting in the car for the ride home, and after we got back, he walked from the driveway into the house. He doesn't seem to be experiencing any leg pain when walking.
Dr. Gee said Dad looks good. We made an attempt, but were unable to get Dad up onto the table, so the doctor did his checkup with Dad in the wheelchair. His BP was 122/66, right ear a little waxy, no wheezing. These are his current meds:
Aspirin 81mg, 1x day
Amlodopine 5mg, 1x day (blood pressure med)
Metoprolol 50mg, 1x day
Aricept 10mg 1x day
Namenda 10mg 2x day
Prozac 10mg 2x day
Lisinopril 5mg 1x day (bp and heart med. Prescribed by Dr. Lai in hospital)
Senna Tablet 2x day
Colace 1x day
Anna told me that Dad is usually taking walks a couple of times a day now, making several "loops" through the halls in the house. She also said that for the past few days, except this morning, he was initiating getting out of bed in the morning, without them having to prompt him. In general, it sounds like there is still occasionally some complaining with this morning get up routine, but nothing unmanageable. Apparently he has been sleeping well, and has made no attempts to get up in the middle of the night, except once when they heard him, and he needed to have a bowel movement. Anna also said they still use the Hoyer Lift to get Dad into his bed at night, to get him placed properly and that he no longer complains about it.
Anna also said that Dad is very talkative, and talks to some of his housemates quite a bit. When I visited this past Sunday, they were celebrating one of the ladies' 101st birthdays! Perhaps there's something special in the water at that house....Dad is almost the baby. 105, 103, 101, 95, 94, 93.
Dr. Gee said Dad looks good. We made an attempt, but were unable to get Dad up onto the table, so the doctor did his checkup with Dad in the wheelchair. His BP was 122/66, right ear a little waxy, no wheezing. These are his current meds:
Aspirin 81mg, 1x day
Amlodopine 5mg, 1x day (blood pressure med)
Metoprolol 50mg, 1x day
Aricept 10mg 1x day
Namenda 10mg 2x day
Prozac 10mg 2x day
Lisinopril 5mg 1x day (bp and heart med. Prescribed by Dr. Lai in hospital)
Senna Tablet 2x day
Colace 1x day
Anna told me that Dad is usually taking walks a couple of times a day now, making several "loops" through the halls in the house. She also said that for the past few days, except this morning, he was initiating getting out of bed in the morning, without them having to prompt him. In general, it sounds like there is still occasionally some complaining with this morning get up routine, but nothing unmanageable. Apparently he has been sleeping well, and has made no attempts to get up in the middle of the night, except once when they heard him, and he needed to have a bowel movement. Anna also said they still use the Hoyer Lift to get Dad into his bed at night, to get him placed properly and that he no longer complains about it.
Anna also said that Dad is very talkative, and talks to some of his housemates quite a bit. When I visited this past Sunday, they were celebrating one of the ladies' 101st birthdays! Perhaps there's something special in the water at that house....Dad is almost the baby. 105, 103, 101, 95, 94, 93.
Sunday, July 11, 2010
Friday
On Friday I stopped by for a visit with Dad. Reports for the week were good. They mentioned that he's actually been walking faster.
Dad seemed happy to see me and was responsive. Asked him if he wanted to go for a walk with me and he said yes and that he'd like to get the exercise. We got up and walked down the hall, out the front door, and then all the way around the side and to the back! We made one stop to sit and rest in the wheelchair. Once inside, it was time for dinner so we moved to sit at the table with the others. Seemed happy to be seated at that point and too tired to say goodbye!
At this point, I have cut one day for Anna---she is now working 3 mornings (M-W) instead of 4. Haydee is still scheduled for Tuesday afternoons (2.5 hours) and Thursday and Saturday mornings, though she has missed the past two Saturdays (sick one day, family conflict the other.)
Dad seemed happy to see me and was responsive. Asked him if he wanted to go for a walk with me and he said yes and that he'd like to get the exercise. We got up and walked down the hall, out the front door, and then all the way around the side and to the back! We made one stop to sit and rest in the wheelchair. Once inside, it was time for dinner so we moved to sit at the table with the others. Seemed happy to be seated at that point and too tired to say goodbye!
At this point, I have cut one day for Anna---she is now working 3 mornings (M-W) instead of 4. Haydee is still scheduled for Tuesday afternoons (2.5 hours) and Thursday and Saturday mornings, though she has missed the past two Saturdays (sick one day, family conflict the other.)
Thursday, July 08, 2010
Talked with Dad
I finally called Dad. He seemed upbeat. He didn't talk much but he said he was okay. It was nice to talk with him after such a long time. I hope to call more often in the future.
Saturday, July 03, 2010
Yesterday and Today
I stopped by briefly to see Dad yesterday and drop off a check for Anna. Reports were all positive that Dad had been doing well, getting daily walks, etc. Dad smiled and said Hello but seemed comfortable and a bit dozy on the couch.
This afternoon I stopped by again to see if Dad might want to go for a ride in my car and possibly come to my house. He was on the couch and we talked for awhile. I was asking about whether he wanted to get up, go for a ride, etc. He was talking a little bit soft spoken...was first saying, "I'm not sure if I like you or not, but you seem nice" then I said, "I'm your daughter, do you remember me" and he said "I'm starting to". Later asked him if he remembered my name and he said "Suzie". I said no I'm Barbara, and he kept saying "Barbrack". Eventually seemed willing to get up...when prompted, he started to reach for walker and did fairly well to adjust himself with just a little assistance pushing on his back...good news being that he showed no signs of resistance either, considering he was kind of slumped in the couch. He stood up and seemed to need to balance a little, but then eventually we walked into the hallway. During the walk he seemed to be saying a lot of "ohs" with his steps, but then I'd ask him if he felt OK and he said "yes" and wanted to continue. Eventually he asked to switch to the wheelchair and we took him outside beside my car.
Asked him if he wanted to go for a ride and he responded "let's just be quiet for a while," so instead we just sat outside...nice sunny day. Dylan was in the car and I pointed that out and I saw Dad looking in at Dylan. I told him "There's your grandson." After several times asking him if he wanted to go in the car, he never seemed interested enough, so we said "Good-bye"
May try again to see if he wants to go for a ride tomorrow, and perhaps come over to my house for the 4th holiday.
This afternoon I stopped by again to see if Dad might want to go for a ride in my car and possibly come to my house. He was on the couch and we talked for awhile. I was asking about whether he wanted to get up, go for a ride, etc. He was talking a little bit soft spoken...was first saying, "I'm not sure if I like you or not, but you seem nice" then I said, "I'm your daughter, do you remember me" and he said "I'm starting to". Later asked him if he remembered my name and he said "Suzie". I said no I'm Barbara, and he kept saying "Barbrack". Eventually seemed willing to get up...when prompted, he started to reach for walker and did fairly well to adjust himself with just a little assistance pushing on his back...good news being that he showed no signs of resistance either, considering he was kind of slumped in the couch. He stood up and seemed to need to balance a little, but then eventually we walked into the hallway. During the walk he seemed to be saying a lot of "ohs" with his steps, but then I'd ask him if he felt OK and he said "yes" and wanted to continue. Eventually he asked to switch to the wheelchair and we took him outside beside my car.
Asked him if he wanted to go for a ride and he responded "let's just be quiet for a while," so instead we just sat outside...nice sunny day. Dylan was in the car and I pointed that out and I saw Dad looking in at Dylan. I told him "There's your grandson." After several times asking him if he wanted to go in the car, he never seemed interested enough, so we said "Good-bye"
May try again to see if he wants to go for a ride tomorrow, and perhaps come over to my house for the 4th holiday.
Wednesday, June 23, 2010
No news is good news?
Got no calls while on my trip regarding Dad. Had texted Haydee and she reported that Dad has been walking and doing well. Have only been able to check in with him briefly the past couple of days since my return. On Monday he gave me a big smile and hello when I saw him. He was a bit reluctant to move from the couch and started very slightly to do the "push backwards" and "hand grabbing" when we were prompting him to lean forward, but eventually did do so and then walked with me about halfway down the hall. Yesterday I was delivering some lotion and only had a minute....they had just started dinner and he was digging into a nice looking plate of roasted chicken and a broiled potato/carrot vegetable dish. Al and Juana reported that he had been quite awake and talkative during the day.
Dad's bed alarm mat arrived while I was gone and I gave that to them as well.
Dad's bed alarm mat arrived while I was gone and I gave that to them as well.
Tuesday, June 08, 2010
PT today
Dad was a bit grumpy at PT this morning. He was walking, but seemed to need a little more help getting up and was not very talkative. We thought we "smelled" something, so we realized we should take him to the bathroom. The trip was quite successful and afterwards he said he was feeling "much better." We wanted to see if he would get in the car again, and when we asked if he wanted to go for a ride he said Yes. We went outside and got him to the point where he was sitting on the seat but with his legs still hanging to the side...then he protested about getting in further asking "Why were we doing this?" Told him we thought that was what he wanted, but if he didn't want to, then fine....he easily lowered himself off the seat and that was it for the day.
After lunch, Haydee arrived, but she phoned me to say Dad was very sleepy. She left and returned later in the afternoon. She got him to walk down the hall, but again he was quite sleepy. It's been a gloomy, misty day here today...perhaps that contributed to his sleepiness.
THursday is Dad's last PT day with Lucinda...Haydee will be there so she will get a good set of instructions for follow through. Anna is doing great as well. Reminder that I'm leaving Thursday until the 20th, and extra caregivers will continue at least until my return. Lucinda said not to hesitate to call and request more PT if we see any downturn.
After lunch, Haydee arrived, but she phoned me to say Dad was very sleepy. She left and returned later in the afternoon. She got him to walk down the hall, but again he was quite sleepy. It's been a gloomy, misty day here today...perhaps that contributed to his sleepiness.
THursday is Dad's last PT day with Lucinda...Haydee will be there so she will get a good set of instructions for follow through. Anna is doing great as well. Reminder that I'm leaving Thursday until the 20th, and extra caregivers will continue at least until my return. Lucinda said not to hesitate to call and request more PT if we see any downturn.
Friday, June 04, 2010
Car and doctor's appt
Wednesday during PT we had a bit more success getting Dad into my car in the 2nd row. THe rest of the session went fine as well. Lucinda commented that it "gives her chills" to think about the progress Dad has made.
I arranged for Anna to be able to come with me to Dad's doctor's appt today to help getting Dad in/out of car. It worked out! He seems to get better each time. He still goes into a little bit of the "fear mode" when being asked to come forward (leaning forward to get out of seat) but handled it better with each successive attempt. Note that getting Dad into the car does require someone (in our case Anna) pulling up on his pants from behind to help lift him onto the seat. Once on the seat, Dad participates in adjusting his feet, body to sit in the seat.
At appointment, doctor had requested x-rays, but I asked him if they were needed---mentioned how difficult it was to get him on x-ray table on prior visit. After checking the prior xrays and examining him (he picked up Dad's leg in a flexed position and rotated it in a circular motion, during which Dad chuckled), as well as being told that Dad is walking several times a day, he agreed it was not necessary and to keep up the good work. He recommended that PT continue, but I will probably have to contact insurance if I want to push it to continue beyond next week (anyone interested in researching this?) . I'm sort of feeling he probably is getting enough exercise each day at this point, so perhaps not worth it. Lucinda also mentioned that should Dad's situation changed, they can always try to "re-activate" it.
Anna also reported that Dad is getting more and more talkative.
Bed Alarm mat has been ordered, but is on back-order. Only cost $75.
I arranged for Anna to be able to come with me to Dad's doctor's appt today to help getting Dad in/out of car. It worked out! He seems to get better each time. He still goes into a little bit of the "fear mode" when being asked to come forward (leaning forward to get out of seat) but handled it better with each successive attempt. Note that getting Dad into the car does require someone (in our case Anna) pulling up on his pants from behind to help lift him onto the seat. Once on the seat, Dad participates in adjusting his feet, body to sit in the seat.
At appointment, doctor had requested x-rays, but I asked him if they were needed---mentioned how difficult it was to get him on x-ray table on prior visit. After checking the prior xrays and examining him (he picked up Dad's leg in a flexed position and rotated it in a circular motion, during which Dad chuckled), as well as being told that Dad is walking several times a day, he agreed it was not necessary and to keep up the good work. He recommended that PT continue, but I will probably have to contact insurance if I want to push it to continue beyond next week (anyone interested in researching this?) . I'm sort of feeling he probably is getting enough exercise each day at this point, so perhaps not worth it. Lucinda also mentioned that should Dad's situation changed, they can always try to "re-activate" it.
Anna also reported that Dad is getting more and more talkative.
Bed Alarm mat has been ordered, but is on back-order. Only cost $75.